So I never put out a prayer request or complain about my health as much as I actually experience health issues... but let me explain how lupus is a “silent illness”. We appear okay even when we are not and sometimes we are okay at lunch but by dinner we are in the ER.
Here’s an example- I went out for dinner and drinks with new friends two days ago. You probably saw the pics...but you didn’t see the part with me sitting down in agony and them taking care of me with copious amounts of water and lemons (oh and they hunted down peppermint too). I even went to work yesterday sick and smiling (and well dressed might I add- after gaining 12 pounds in two weeks and almost crying bc I couldn’t fit my intended dress) ...but my coworkers expressed some concern about the strange sound that didn’t sound like any kind of sound they’d heard before (probably bc they think it’s actually my heart and my lungs in tandem) that I dismissed- of course...
I posted on FB yesterday and this morning like all is well (it is actually) not wanting to tell the world that I’m in the hospital- yet again- for fighting phucking lupus.
I hate lupus.
I hate hate hate hate lupus.
I try to smile and press through, keep my faith, and I do try to listen to my body. I will admit (yes I’m confessing) I feel embarrassed and ashamed for being struck with this damn chronic illness. I feel ashamed for sometimes being scared when I am a woman of strong faith. I hear constantly that faith and fear don’t mix so I dig in to speak life over myself and claim my healing but I actually do get scared.
Then there’s this- I was taught by my mom to do all things with grace. I try to make it appear easy. Therefore, I don’t want to complain, always have people worry, give updates on my health status, because- as much as I get sick and go in the hospital with this horrible illness- i realize it is easy for anyone outside to misinterpret my intentions and to even add “she doesn’t look sick” or “she wants attention” or “here we go again”.
So instead- while sick- I work. I do my house work. I shop. I attempt to dance. I exercise. I sing. I laugh, and I do yoga. Why?... because I am a fighter. I’m a #lupuswarrior BUT ... I landed my butt back in the hospital AGAIN.
Not only am I embarrassed to call out of work, I am embarrassed to spend a day in bed healing myself- because I was taught that laying around means you’re lazy.. I am afraid to be a burden to anyone and I am also afraid of being judged.
The saddest part for me is that I pretend to feel good just so I don’t push people away by being sick. Someone said that true friends and those that matter will never walk away from you because you’re ill. I’ve read of countless people who have lost husbands, wives, family, friends, their jobs, their livelihood, and dare I say, their futures all because of lupus!
So YES! I need your prayers. I need prayers to stop beating myself up and worrying others will get tired of having a sick me in their lives. I know God as HEALER.
My biggest problem is ME. So yes pray for me please. Thank you.